The Completely Revised and Updated OASIS Guide to Asperger Syndrome
by Patricia Romanowski Bashe and Barbara L. Kirby
Forewords by Simon Baron-Cohen, PhD and Tony Attwood, PhD
Now available In Local and Online Bookstores
Click Here for
more information, reviews and to order.
New York Times Review of the 1st Edition of the OASIS Guide To Asperger Syndrome
NEW BOOKS:
Note: the following is a review from the publisher, but I also think the book is terrific and highly
recommend it.
Look Me In The Eye is the moving, darkly funny story of growing up with Asperger’s at a time when the diagnosis simply didn’t exist.
A born storyteller, Robison takes you inside the head of a boy whom teachers
and other adults regarded as “defective,"...... He also provides a fascinating reverse
angle on the younger brother he left at the mercy of their nutty parents—the boy
who would later change his name to Augusten Burroughs and write the bestselling
memoir Running with Scissors. Ultimately, this is the story of Robison’s journey
from his world into ours, and his new life as a husband, father, and successful
small business owner—repairing his beloved high-end automobiles. It’s a strange,
sly, indelible account—sometimes alien, yet always deeply human.
Click Here to order from the OASIS bookstore (purchases
help support OASIS>
The movie titled, Mozart and the Whale staring Josh Hartnett and Radha Mitchell will be available on
DVD December 12, 2006. This movie was based on the story of Jerry and Mary Newport. To order through the OASIS
bookstore link (purchases help support OASIS) please click,
Here or visit the
OASIS Store.
In addition, Jerry and Mary's book, Mozart and the Whale: An Asperger's Love Story (Simon and Shuster) will be
available in January, 2007. The book can be ordered by clicking Here.
Jerry is also the author of "Your Life Is Not a Label" and co-author (with Mary) of
"Autism-Asperger and Sexuality" and I recommend all three. Their books are available through the OASIS bookstore.
I recently was asked how visitors who have been helped by the OASIS page
and the support forums could return the favor. OASIS is not a nonprofit or a large
organization. I've run OASIS as a volunteer effort with no funding or financial
support for nearly thirteen years and personally cover all expenses involved.
In addition to keeping OASIS up-to-date, I answer e-mail and moderate the forums.
If you or your family have been assisted by OASIS and you are willing to help,
please visit Support OASIS.
There is an OASIS store at www.aspergersyndrome.org/bookstore.html
which links to the Amazon stores, Future Horizons and AAPC. Any purchase (books, DVDs, CDs, clothing, kitchen appliances,
exercise equipment, vitamins, GFCF food, and more) made through the link helps keep OASIS going. Your help is needed and greatly
appreciated.
Autism Diet and Nutrition Study
A collaboration of programs and agencies, including the Delaware Division for Developmental Disabilities
and the Delaware Department of Education, are interested in the nutritional and dietary needs and concerns
of children with autism. During the past decade, a number of professionals, families, and advocates
have raised numerous questions about the impact of nutrition and diet on the development of children
with autism. Your assistance with determining these needs and concerns is critical.
Click Here to complete the survey
Asperger Syndrome and Parenting - Online Survey
To participate in this online survey please go to: www.jeanneangus.info
NOTE: A password is needed to gain access to the
website. The password is: asperger
This is an article
written by a former journalist who is also the parent of a child with AS. It's meant to be
shared with grandparents in the hopes that they'll better understand our children. This article might
be of use to families who will be spending time with relatives during the holidays.
Formerly known as simply "MAAP Services", this national nonprofit organization has
added "for the Autism Spectrum" to their name to more clearly define their
mission and nature of their work. MAAP Services for the Autism Spectrum is an organization dedicated to
serving the needs of the Autism Spectrum, including High Functioning Autism, Asperger Syndrome, PDD-NOS,
Hyperlexia, and Nonverbal Learning Disorders.
I recently was asked how visitors who have been helped by the OASIS page
and the support forums could return the favor. OASIS is not a nonprofit or a large
organization. I've run this site out of my home as a volunteer with no funding or financial
support for nearly nine years and personally cover all expenses involved.
I donate my time to keep OASIS up-to-date, answer e-mail and moderate the forums.
If you or your family has been assisted by OASIS and you would like help,
please visit Support OASIS
University of Delaware, Center for Disabilities Studies
Online survey - looking for participants from throughout the United States
Department of Applied Psychology
Seeking Parents of children ages 5 to 16 yrs. old who have been identified as having Asperger Syndrome.
Parents are invited to take part in a research study to learn more about parents of children with Asperger Syndrome and
their parenting experiences. This study will be conducted by Jeanne Angus, Applied Psychology, Steinhardt School at New
York University, as part of her doctoral dissertation. Her faculty sponsor is Samuel Juni, Ph.D, Applied Psychology,
Steinhardt School at New York University.
"MY TURN, YOUR TURN: Songs for Teaching Social Skills"
Nationally known singer/songwriter Cathy Bollinger collaborated with
Josh Tucker (9 year old with ASD) to create songs that address common social skill challenges,
such as looking towards ones' eyes, taking turns, saying excuse me, asking for help and MORE..
For a preview and order form please visit their web site at
www.rivannamusic.com Mention the OASIS web site when you order and a small portion of
the proceeds will be donated to OASIS.
Created by a young adult with AS, this is a New Jersey based web site providing
information, messageboard, and links to resources including local support groups for young adults and parents. Please visit the web site at
Asperger Help Desk
This site isn't new but I thought I'd mention it again. There is a lot of great information for teens with AS.
Edited by Diane Twachtman-Cullen and Liane Willey and published by Starfish Press.
University of Cambridge - UK Asperger Syndrome (AS) Sibling Pair Project
They are looking for adults or children who are diagnosed with AS to take part
in a new genes project, along with their brothers and sisters. This new worldwide study involves collecting
a DNA sample and a questionnaire from individuals with Asperger Syndrome and their biological
brothers and sisters. Providing a DNA sample is quick, easy and a completely
painless process. This research may enable them to identify specific genes
involved in Asperger Syndrome, furthering our understanding of the condition
and possibly leading to earlier diagnosis. For more information on how you can
participate and the benefits of participation in these and other AS related projects, please visit the
Research area of OASIS.
While this book has nothing to do with AS, it was written by a teen with the diagnosis. It has gotten good reviews, is supposed to
be unbelievably funny, and could make a nice gift for those who love the internet.
Click
Here to order.
This paper by the Associate Director of University of
Miami Center for Autism and Related Disorders is a wonderful resource for information on
helping AS children prepare for the new school year. Diane is also the co-author
of the excellent, Asperger syndrome and adolescence: Practical
solutions for school success
This is the Letter of Introduction featured on pages 369-374 in THE OASIS GUIDE TO ASPERGER
SYNDROME. It can be adapted to describe individual children and very helpful as a way to
provide information to teachers. Click Here to
copy and paste or send an e-mail to request a Word File.
This is a web site created by a teen who has the diagnosis of AS in order to help
other teens with the diagnosis.
This is a web site designed by a woman with Asperger Syndrome, who
is interested in examining possible connections between ADHD, Asperger
Syndrome and other autistic spectrum conditions. She aims to provide
information on these and related disorders, plus give readers insight by
including the writing, art and poetry of herself and others affected by
these conditions. Written and artistic contributions are being
accepted.
This is a wonderful powerpoint
slideshow presentation on Asperger Syndrome which was put together by a parent who is also
a medical professional. It's perfect to use for an inservice to educate teachers and others about
about AS.
Social Understanding Difficulties Research Project
We are looking for young men of normal intelligence 10-18 years of age with social understanding difficulties (as seen in Non-Verbal Learning Disorder, Asperger's Syndrome, High Functioning Autism and Pervasive Development Disorder-Not Otherwise Specified) in the San Francisco and Bay Area and their families to participate in a genetic study.
This study is of Social Understanding Difficulties so we need young men with and without the one of the above diagnosis. We are extremely interested in abilities or strengths that we believe might be associated with social understanding difficulties.
The young men and their families would be asked to complete a social screening questionnaire, undertake some related tasks and donate a small amount of blood for genetic study. This can be done at your home or Stanford University - in the evenings or weekends if more convenient.
There will also be a smaller brain imaging part to the study and some young men may be asked if they would like to have their brains scanned!
Contact: Judith Piggot, an Adolescent Psychiatrist doing research at Stanford University, by Email at: jpiggot@stanford.edu or phone: (650) 498 4660.
Seeking Video Tapes of Infants (up to 15 months) of individuals now diagnosed with AS
In our earlier work, we have shown that movement patterns as early as 6 months of age are reliable markers for diagnosing kids at risk of autism. We believe people with AS display the same movement disturbances and therefore can be diagnosed much earlier than is typical by current methods. WE NEED VOLUNTEERS! If you have been diagnosed with AS, or you are a parent with such a child and have home videos taken in infancy (up to 15 months) and are willing to share these videos, please contact us. Videos will copied and the originals will be returned.
Contact:
Professor Philip Teitelbaum
Psychology Department
P.O. Box 112250
University of Florida
Gainesville, FL 32611
e-mail: teitelb@ufl.edu
Simon Baron-Cohen
Departments of Experimental Psychology and Psychiatry
University of Cambridge, Downing St,
Cambridge, CB2 3EB, UK
Tel: 01223-333557; Fax: 01223-333564
The good news is that there are many new books being published. Too many to post here.
To see a listing of the newest AS related books please visit the OASIS Bookstore
Section Books Just Published or Coming
Soon
The first three videos are by Michael Thompson Productions
a company owned by the parents of a child with Asperger Syndrome.
Michael Thompson Videos are available through AAPC (AUTISM/ASPERGER PUBLISHING COMPANY)
COST is $40.00. Send Payment along with Mailing Address to:
On this new video of her acclaimed workshops, Carol Gray demonstrates how to write Social Stories.
Video to help educate teachers about AS, interviews with Teachers, Psychologists, SLP, OT, Parents and Kids
Tony Attwood, PhD interviews Liane Willey (author of "Pretending to be Normal").
Sally Bligh, SLP Demonstrates the use of Social Language Groups in
working with AS children.
CLICK HERE
to visit AAPC's web site.
by Dan and Julie Coulter, Coulter Video.
Order
online at www.coultervideo.com
by Dan and Julie Coulter, parents of a child
with Asperger Syndrome.
Interviews with parents, regular and special education
teachers, a psychologist, an instructional aide and a
social worker/case manager giving practical advice from
their experience successfully integrating children with
AS into K-12 classrooms. NOTE: I particularly recommend this video for parents of
high school students.
Order
online at www.coultervideo.com
by Linda Baker, PhD
This video describes Asperger Syndrome
and includes several interviews with Teenagers with AS and their families
Linda Baker,PhD Keene State College, 229 Main St, Keene, NH 03435-3400
with Carol Gray
Click Here to
Order
ADULT ISSUES (Formerly "Our View")
This business was opened in 1995 to offer a service that helps people
with Asperger Syndrome(AS) and more able autism acquire vocational
skills and find meaningful work. In addition, they present workshops and seminars.
Click Here to link to their
webpage at www.anythingispossible.ca
The David Center is a new Long Island-based group dedicated to providing guidance, education, and support for families of children with autism spectrum disorders and related disorders through a network of parents and professionals.
This is a private forum on delphi that is open only to individuals on the Spectrum. For Information about joining go to http://forums.delphiforums.com/aspies
OTHER LINKS AND NEWS OF INTEREST
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